Pulmonary Hypertension Biorepository and Registry
Purpose
Establish a pulmonary hypertension registry and biorepository to lead towards a further understanding of the disease.
Conditions
- Pulmonary Hypertension
- Pulmonary Arterial Hypertension
- Pulmonary Hypertension Due to Left Heart Disease
- Pulmonary Hypertension, Primary
- Pulmonary Hypertension Due to Lung Diseases and Hypoxia
- Pulmonary Hypertension, Primary, 4
- Pulmonary Hypertension, Primary, 2
- Pulmonary Hypertension, Primary, 3
- Chronic Thromboembolic Pulmonary Hypertension
Eligibility
- Eligible Ages
- Over 18 Years
- Eligible Genders
- All
- Accepts Healthy Volunteers
- No
Inclusion Criteria
- The participant is a patient at TUKHS or has agreed to participate in a study approved by the KUMC Human Research Protection Program (HRPP) 2. The participant has a diagnosis of pulmonary hypertension confirmed by right heart catheterization 3. Patient is ≥ 18 years of age or older
Exclusion Criteria
- Participant declines to participate (living patients only) 2. Participant is unable to provide informed consent (living patients only)
Study Design
- Phase
- Study Type
- Observational [Patient Registry]
- Observational Model
- Cohort
- Time Perspective
- Prospective
Recruiting Locations
University of Kansas Medical Center
Kansas City, Kansas 66160
Kansas City, Kansas 66160
More Details
- Status
- Recruiting
- Sponsor
- University of Kansas Medical Center
Detailed Description
The aim of this project will be to establish a broad and wide-ranging registry and biorepository of blood samples from patients with pulmonary hypertension, including all WHO groups I-V to be used for future research in these areas. This will be both a retrospective and prospective project. The registry and biorepository will be utilized to study and grow our knowledge of the cellular mechanisms and mediators of the disease and, in turn, contribute to advancements in treatment.