Interstitial Lung Disease Research Unit Biobank

Purpose

Establish a interstitial lung disease (ILD) registry and biorepository to lead towards a further understanding of the disease.

Conditions

  • Interstitial Lung Disease
  • Sarcoidosis
  • Idiopathic Pulmonary Fibrosis
  • Pulmonary Fibrosis
  • Hypersensitivity Pneumonitis

Eligibility

Eligible Ages
Over 18 Years
Eligible Genders
All
Accepts Healthy Volunteers
No

Criteria


Inclusion Criteria:

1. The participant is a patient at TUKHS or has agreed to participate in a study approved
by the KUMC Human Research Protection Program (HRPP)

2. The participant is being followed for the presence of autoimmune disease, ILD or other
rare lung diseases at TUKHS.

3. The participant is ≥ 18 years of age.

4. The participant has signed an approved consent for this study (living patients only)

Study Design

Phase
Study Type
Observational [Patient Registry]
Observational Model
Cohort
Time Perspective
Prospective

Recruiting Locations

The University of Kansas Medical Center
Kansas City, Kansas 66160
Contact:
Kimberly Donnelly, Ph.D.
913-588-6067
kdonnelly@kumc.edu

More Details

Status
Recruiting
Sponsor
University of Kansas Medical Center

Study Contact

Kimberly Donnelly, Ph.D.
913-588-6067
kdonnelly@kumc.edu

Detailed Description

The University of Kansas ILD and Rare Lung Disease clinic sees hundreds of new patients per year. The investigators would like to leverage this resource to develop an Interstitial Lung Disease Research Unit (ILDRU) repository and database to help develop new methods for early diagnosis, uncover underlying genetic and environmental risk factors, as well as potential treatment targets in the broad range of interstitial lung diseases and rare lung diseases (RLD).